blog.bioethics.net
a Nature Top 50 science blog from The American Journal of Bioethics
Entries from blog.bioethics.net tagged with 'genetic disease'
Is the Era of Personalized Medicine (Almost) Really Here?
In the last week, I've read two news items that have resulted in my asking the question, "Is the era of personalized medicine really here? It would seem as though it is still a long way off--as we do not hear from physicians or anyone else for that matter that... (read the rest)
Parents Don't Sweat the Gene Stuff
According to US News and World Report, a recent study done by researchers from the University of Michigan reports that parents do not overreact to genetic test results for their children, and in fact, treat the data similar to family history. What do these findings suggest? Predictive genetic testing for... (read the rest)
Consider the Source
The American College of Preventive Medicine has announced via MarketWatch that it will be producing a new CME program to help physicians understand genetic information in the coming era of personalized medicine. The funds for this project called "Genetic Risk, Screening, and Intervention", come from an "unrestricted grant" from Navigenetics.... (read the rest)
Unintended consequences from GINA?
Many have hailed the passage of the Genetic Information Nondescrimination Act as a major policy advance. And while there are certainly people who will benefit from the protections included in the law, Emory's Ani B. Satz argues in the Atlanta Journal Constitution that many will also lose out because of... (read the rest)
Blood Matters
In NYT this weekend, Jennifer Senior reviewed Masha Gessen's Blood Matters: From Inherited Illness to Designer Babies, How the World and I Found Ourselves in the Future of the Gene this weekend: ... While it was Gessen’s misfortune to have inherited her mother’s cruel mutation [BRCA1], it was her good... (read the rest)
Are you diseased? Pre-diseased? Potentially diseased?
Today's Science Times included an interesting story about work toward classifying diseases by their genetic underpinnings. There are bunch of interesting angles to this idea, but one in particular stood out for me: as we gain greater insight into the nature of disease, our concept of what it means to... (read the rest)
Human ES Cells for Huntington Disease – the Australian Way
By Ricki Lewis Palm Springs – I’ve been hearing about stem cells at scientific meetings for nearly a decade – from the yearly International Society for Stem Cell Research meetings, to stem cell symposia at various large conferences, to focused events such as the New York Stem Cell Foundation meetings.... (read the rest)
Science's Breakthrough of 2007
And the winner is... human genetic variation. From the journal's article explaining its choice: The unveiling of the human genome almost 7 years ago cast the first faint light on our complete genetic makeup. Since then, each new genome sequenced and each new individual studied has illuminated our genomic landscape... (read the rest)
Genetic testing in the media spotlight
The implications of genetic testing have gotten some high profile media coverage in the last week. NYT produced a package of multimedia content around Amy Harmon's Sunday article about a young woman's decision to get tested for the Huntington's gene. Here's a snip: The test, the counselor said, had come... (read the rest)
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